• Research and Resources for Collaboration

  • Network with Adult Sickle Cell Providers

  • Patient Care Resources

  • Education on Clinical Management and Research Opportunities

The Sickle Cell Adult Provider Network (SCAPN)

The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease.  This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.

News

CMS Report on Sickle cell disease and Opioids  

The Invisible Crisis: Understanding Pain Management in Medicare Beneficiaries with Sickle Cell Disease
Cara V. James, Ph.D. and Shondelle Wilson-Frederick, Ph.D. CMS Office of Minority Health
 

Conclusion: This study highlights variability in opioid prescribing among Medicare beneficiaries with SCD.  For the majority of patients with SCD, opioid analgesics were an important treatment option, and a subset utilized doses of greater than 120 MME to manage SCD-related pain. The complex nature of SCD pain management may be exacerbated by ongoing efforts to address the opioid epidemic. Excluding sickle cell patients from efforts to restrict opioid access, similar to exclusions for cancer, hospice patients, and other patients with complex pain syndromes, could help ensure that sickle cell patients have access to appropriate care that improve patient health outcomes. As new pain management options are identified, the needs of patients living with SCD should be considered. 

To see the full report; CMS Opioid Brief:  https://www.cms.gov/About-CMS/Agency-Information/OMH/research-and-data/information-products/data-highlights/Understanding-Pain-Management-in-Medicare-Beneficiaries-with-Sickle-Cell-Disease-.html

 

Events

American Society of Hematology 60th Annual Meeting and Exposition

December 1 - 4, 2018

San Diego, CA

 

 

 

 

 

  • UPDATE YOUR PROFILE

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  • Having Technical Issues?

    If you encounter problems trying to log in to the website, please email us at support@scapn.net and let us know. We're here to help!

  • SCAPN MEETING

    The next meeting of the Sickle Cell Adult Provider Network (SCAPN) will be held at the 60th Annual ASH Meeting in San Diego, California

    December 1 - 4, 2018

    More details with specific day and time will follow.

     

     

     

  • Welcome to SCAPN.net

    We are excited to launch our new website!  A big thank you to the Doris Duke Foundation.  We are now a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults!  We welcome you to visit the site and become interactive with us.

    • Feedback on the web site
    • Joining SCAPN
    • Donations
    • Meeting Details
    • Blog
  • JOIN OUR EMAIL LIST

    Click here to become a member and stay informed of all the upcoming news and events.   SCAPN is a 501(c)3 and all donations are tax deductible.