• Research and Resources for Collaboration

  • Network with Adult Sickle Cell Providers

  • Patient Care Resources

  • Education on Clinical Management and Research Opportunities

The Sickle Cell Adult Provider Network (SCAPN)

The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease.  This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.


Dear Partners,

On September 13 at noon, please join the National Heart, Lung, and Blood Institute (NHLBI), part of the NIH and our federal partners as we announce the new Cure Sickle Cell Initiative, a collaborative research effort to accelerate the development of promising genetic therapies to cure sickle cell disease. The initiative fosters a patient-focused research environment that will identify and support the most promising and innovative genetic therapies.

This effort builds on the NHLBI’s legacy of sickle cell research, which is helping many patients live longer, fuller lives.

We need your support as we launch this exciting new initiative on September 13. Please:

1) Share these messages and images with your social networks between noon and 12:30 p.m. ET on Thursday, September 13. *Please do not post before noon on September 13*

For Facebook

  • The @National Heart, Lung, and Blood Institute just announced the Cure Sickle Cell Initiative, a collaborative research effort to accelerate the development of promising genetic therapies to cure sickle cell disease. The Initiative will engage researchers in academia and industry, clinicians, patients, and advocates to ensure its success. Learn more at https://curingsicklecell.nhlbi.nih.gov. Together we can cure Sickle Cell Disease! #CuringSCD

For Twitter

  • Today, @NIH_NHLBI launched the Cure Sickle Cell Initiative, a collaborative research effort to accelerate the development of cures for #sicklecelldisease. Learn more: https://curingsicklecell.nhlbi.nih.gov #CuringSCD

Note: The website link for the Cure Sickle Cell Initiative will be active on September 12th. 

Find links to images here:

2) Ask your members or partners to share the same messages with their networks to help us raise awareness about this important announcement.

For additional resources and information, please visit https://sicklecell.nhlbi.nih.gov.

There is so much more to come. Working together we can, indeed, turn our hopes, dreams, and desires for curing sickle cell disease into reality.

Thank you in advance for your support!


Lenora E. Johnson, DrPH,
Director Office of Science Policy, Engagement,
Education, and Communications
National Heart, Lung, and Blood Institute 

Follow us on Twitter and Facebook.





September 6 -8, 2018 - 10th Annual Sickle Cell Disease Educational Seminar

Integrative Medicine and Sickle Cell Disease: A Multi-Disciplinary 21st Century Approach

Keynote Speakers: Cage Johnson, MD and Elliott Vichinsky, MD

UC Davis Medical Center, Sacramento, CA

Contact: cassie@cayennewellness.org or www.cayennewellness.org to register


September 7-8, 2018  -  Duke School of Nursing Sickle Cell Disease Symposium

Duke School of Nursing

Details to follow


October 10 - 13, 2018 - 46th Annual National Convention

Sickle Cell Disease Association of America (SCDAA)

"Celebrating Diversity Within the Sickle Cell Community: Commitment, Innovation, Practice"

Baltimore, Maryland


October 22-23, 2018

Sickle Cell in Focus

Natcher Conference Center, Ruth L. Kirschstein Auditorium

45 Center Drive

National Institutes of Health (NIH) - Besthesda, MD 20894


October 27, 2018

Racing to Improve SCD care Access and Outcomes

Atrium Health (Formerly Carolinas Healthcare System)

Location: The Speedway Club

5555 Concord Pkwy South

Concord, NC 28027



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  • Having Technical Issues?

    If you encounter problems trying to log in to the website, please email us at support@scapn.net and let us know. We're here to help!


    The next meeting of the Sickle Cell Adult Provider Network (SCAPN) will be held at the 60th Annual ASH Meeting in San Diego, California

    December 1 - 4, 2018

    More details with specific day and time will follow.




  • Welcome to SCAPN.net

    We are excited to launch our new website!  A big thank you to the Doris Duke Foundation.  We are now a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults!  We welcome you to visit the site and become interactive with us.

    • Feedback on the web site
    • Joining SCAPN
    • Donations
    • Meeting Details
    • Blog

    Click here to become a member and stay informed of all the upcoming news and events.   SCAPN is a 501(c)3 and all donations are tax deductible.