• Research and Resources for Collaboration

  • Network with Adult Sickle Cell Providers

  • Patient Care Resources

  • Education on Clinical Management and Research Opportunities

The Sickle Cell Adult Provider Network (SCAPN)

The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease.  This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.

News

Building on Our Legacy of Excellence in Sickle Cell Disease Research

Since its founding in 1948, the National Heart, Lung, and Blood Institute (NHLBI) has advanced the understanding of sickle cell disease and improved clinical care. The NHLBI is committed to building on our legacy of research excellence to find new treatments, cures, and personalized care for the approximately 100,000 Americans, and more than 20 million people worldwide, who have sickle cell disease.

Learn more about NHLBI’s legacy of research a PDF for download ay NHLBI Sickle Cell Legacy

 

Hope & Destiny 5th Edition (2019): New Book release
Hope & Destiny 5th edition provides clear-cut and in-depth information for the more than 100,000 Americans living with sickle cell disease. Written especially for parents and caregivers, this newly revised edition includes the latest information on:
* Using Endari or L-glutamine as a preventative for younger children;
* Using gene therapy and Hydroxyurea therapy;
* Curative bone marrow transplant and advances in sibling transplants;
* New apps, videos, and social media for communication and care, and more!

About the Hope & Destiny Sickle Cell Disease Book Series: 
Sickle Cell Disease is the most common blood disorder in the U.S. Since first published, more than 75,000 books from the trusted HOPE and DESTINY sickle cell disease (SCD) series have been used by patients, caregivers, family members, students, and healthcare professionals around the globe. Now, newly revised editions are about to be released! HOPE and DESTINY: The Adult Patient and Parent’s Guide to Sickle Cell Trait, and HOPE and DESTINY Jr.: The Adolescent’s Guide to Sickle Cell Disease, provide the most comprehensive education about sickle cell disease available today, including the latest and most accurate information about treatment regimens, medications, and medical insights to help patients and loved one’s cope with the physical, emotional, and psychological distress caused by SCD. HOPE and DESTINY is the nation’s best-selling book series on SCD because it keeps pace with changes in modern medicine while also providing comprehensive information in an easy-to-read and concise format. https://hiltonpub.com/bookstore/product/hope-destiny-5th-ed-2019/

 

Published from Sickle Cell News - July 2019

 

Events

 

August 26 - 28, 2019 -  Annual Sickle Cell Disease Research Meeting

              NHLBI Natcher Conference Center - Bethesda, MD.

 

August 28, 2019  Sickle Cell Adult Provider Network Annual Symposium 8:00am - 12:00noon

              NHLBI Natcher Conference Center - Bethesda, MD

 

October 9 - 12, 2019 - SCDAA 47th Annual Convention

              Renaissance Baltimore, MD - Harborplace Hotel

  

November 9, 2019 - 5th Annual Sickle Cell Disease Symposium - Atrium Health

               The Charlotte Motor Speedway Club

               5555 Concord Parkway S.

               Concord, NC 28027

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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  • SCAPN MEETING

    The next SCAPN meeting will be held at the Annual SCD Research Meeting at the NHLBI

    August 26 - 28, 2019

    The SCAPN Symposium will be held on August 28th from 8:00a - 12:00 noon.

     

     

  • Welcome to SCAPN.net

    We are excited to launch our new website!  A big thank you to the Doris Duke Foundation.  We are now a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults!  We welcome you to visit the site and become interactive with us.

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    • Blog
  • JOIN OUR EMAIL LIST

    Click here to become a member and stay informed of all the upcoming news and events.   SCAPN is a 501(c)3 and all donations are tax deductible.