Doris Duke Charitable Foundation Project Proposal

Project Title:  Sickle Cell Adult Provider Network (SCAPN): Expanding A Research Resource for the Study of Adult Sickle Cell Disease

The overall aim of the project is to enhance and expand the capacity of the Sickle Cell Adult Provider Network (SCAPN) to further research efforts directed at the adult sickle cell population.  In doing so, the organization will also be better positioned to further its work in best practices development, healthcare provider education and training, and recruitment and retention of healthcare providers to serve the adult sickle cell disease population.

In order to achieve this aim, we propose the following specific activities;

1.  Formalize a network of adult sickle cell disease researchers.

2.  Establish survey research procedures to enhance clinical study development.

3.  Enhance the existing SCAPN website.

4.  Establish SCAPN as a formal organization with 501(c)3 status





    Please take a moment to update your Profile

  • Having Technical Issues?

    If you encounter problems trying to log in to the website, please email us at and let us know. We're here to help!


    The next SCAPN meeting will be held at the Annual SCD Research Meeting at the NHLBI - August 2021




    Click here to become a member and stay informed of all the upcoming news and events.   SCAPN is a 501(c)3 and all donations are tax deductible.